Showing posts with label pediatric cancer. Show all posts
Showing posts with label pediatric cancer. Show all posts

Saturday, September 13, 2014

Five Years Ago Today....


First day of Kindergarten

Five years ago today, my world changed.  My son, a kindergartner of only two days, was rushed to CHAM to begin treatment for High Risk Leukemia.  But we had woken up that morning thinking the world was a safe and lovely place.  School had just started and we were all excited.  Sammy was finally part of it all, a big kid at elementary school...he had so much to learn and so many friends to meet.  Except he didn't....

The rest is history.  The blog details the horrors of the first night, the feeling of despair, the heartache and constant readmissions.

Five years...so long ago....exactly half Sammy's lifetime ago.

Today I allow myself to remember...I don't need to re-read the blog...it is all still an open wound if I let it be.  Only today...only today will I allow myself to dwell on the past.  Tomorrow I will get back to living in the present and fighting to kick cancer's ass with awareness and fundraising.  I don't do it for Sammy...I do it for those who are fighting and are about to fight.

Here is a brief look back at then...and a few pictures celebrating how far my hero has come!


Just after initial admittance - there was still some hair under that hat!



Neutropenia meant keeping Sammy germ free! 



Sammy in school...he made it into Kindergarten for about 6 weeks out of the whole year. 

Spiderman's Hero


Superman Sammy at the LTN Walk


Graduation from elementary school


Goofing around with moi!  

Doing what kids do...

"I just want to be a NORMAL kid" - Sammy 2014




Monday, December 31, 2012

Merry Christmas

It has certainly been a fabulous Christmas this year. For the first time since 2008 we had a family holiday without the Cancer Monster in the room. Of course the monster lurked under the bed still, it always will, but we had a wonderful time and ignored the beast almost completely!

I love decorating the tree. I don't get to do the chic, color-coordinated tree of my designer dreams; instead I have the most spectacular tree filled with children's ornaments and happy memories. My tree has history adorning it. My tree is a family tree.


Our week off was very family oriented. We began with a trip to New York City to see The Grinch at MSG. It was so much fun. The kids enjoyed the thrill of being in the city and soaked up the spectacle of the musical numbers. I got a thrill out of being back at MSG having been there a week earlier for the 12/12/12 Sandy Benefit Concert. Then there was our visit to the tree at Rockerfeller Center which was magnificent. The kids had seen it before, but had been too young to remember. We were finally doing the trip we wanted to become a kiddy tradition every year...finally. I was acutely aware of how lucky we were that we could start our tradition now.



Christmas Day was a family affair once again. Cousins and grandparents joined in the merriment. The boys loved their gifts from Santa, and I was rather impressed with myself for cooking the roast lamb to perfection....I'm not a cook so I toot my own horn on that one!


Boxing Day (as I will always call it being British) was quiet and a chance to hang out together without any agenda. A little shocked by how quickly Christmas comes and goes, I settled in to enjoy my sons playing with their new toys and joining in the odd board game or two. I ate the leftovers...the plebeians chose not to for some inexplicable reason!!! Crazy!




Being a couple is not easy when you have kids. Our couple time had become non-existent during the treatment years and we were finding it very hard to get our grove on as a partnership in anything other than medical and discipline control. Thankfully, Nana and Poppa came to the rescue with a precious gift, the gift of time. They took the boys for a two night sleepover. Talk about win-win! The boys were very excited and I came in after dropping them off to a house filled with a roaring fire and candlelight. Some much needed time together was spent actually talking to one another about us and our interests, rather than the kids. Note to self...do this more often!

Another big event was Sammy's first ever sledding day. Although he was given the all clear last year, there had not been any snow...go figure! Finally, we set out, all bundled up, to watch as our precious children hurled themselves down steel and slippery hills, crying out with delight at the thrill of feeling the snow kiss their cheeks and the wind whiz past them as they hit top speed just before reaching the tree line :-) I was not concerned, protective or afraid for them. I loved it! They were free! They were kids! They were happy, and so was I.



There were many jobs I planned to do over this vacation, and I must admit they did not get done. They await my attention, laughing at my procrastination. But I don't care! I laugh back at them because I have had a Christmas to remember for a lifetime. My boys were happy and healthy (ignoring the panic of the small spots appearing on Sammy and the rush to CHAM to check him out) and I got a chance to feel like we could really doable normal things families do during the Holidays. We knew the cancer monster was around, but he was well hidden and a little scared to show himself with all the laughter and merriment filling the house.

So, I wish you all a very Happy New Year! May we find the cure in 2013 and bring joy to thousands of families fighting monsters.






















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